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Christmas Give Back!

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Christmas Give Back
© Claudia de la Mata

December 2, 2019

Recently I received an email with the subject ‘Christmas give back’, I couldn’t help but feel touched straight away: this message was coming from a friend whose 3-year-old son was diagnosed with a stage 3 Rhabdomyosarcoma located in his pelvis, a rare cancer, just a year ago.

After their son was diagnosed, my friends have undertaken an incredibly hard journey to win the battle and spent more than 2 months in hospital with their son, including Christmas 2018. 
 

‘This very sad Christmas was also an incredible experience because we were surrounded by so much love and joy thanks to the associations and other families who came together to offer gifts to sick children and to bring some joy.’

Their little boy is still fighting the disease, but has been able to go back to school and will spend this Christmas with his family at home. Filled with gratitude and love, my friends are bringing people together to collect presents for the children and their parents that will spend their Christmas in hospital. They are also supporting Alice’s Arc, a charity dedicated to funding research into finding a cure and less invasive treatments for Rhabdomyosarcoma, in the name of ‘Hope with Gaspard’. If you would like to get involved and donate, go here.

Beautiful Gaspard playing football with his friends
Gaspard going back to school !

Thanks to amazing doctors, nurses, scientific research, technology, charities and donators, nowadays there is hope against cancer. Survival for children’s cancers is improving and has more than doubled in the last 40 years in Great Britain, according to Children’s Cancer Research. 

However, 73% of childhood cancer survivors have a chronic health condition and 42% have severe, debilitating or life-threatening conditions after 30 years. These statistics show us that, despite improvements, there is still a need to fight for better, kinder treatments for children with cancer.

It can be so easy for us to take our health for granted, to get swept up in the everyday without fully appreciating the support, the love, the richness of life. Now’s your chance to share in the Christmas spirit and give back to the world. I would like to help my friends and all the families affected by Rhabdomyosarcoma, by encouraging you to donate, give a little of your time or use your skills to help all the children in need this Christmas.

Why is your donation for the research on Rhabdomyosarcoma cancer so important?

 

There are 70 new cases of Rhabdomyosarcoma in the UK a year, this is an aggressive form of childhood cancer with a variety of subtypes such as embryonal and alveolar which influence the outcome. Rhabdomyosarcoma has a high rate of relapse once it’s cured, and the survival rate in case of relapse is 17%.

Compared to adult cancer, very little is invested in research into children’s cancers. 60% of research and development budgets in pharmaceutical companies goes towards finding adult cancer drugs and compared to near zero for children. This is a complex area involving issues relating to politics, legislation and profitability.

Here are the charities where you can give your bit:

 

Alice’s Arc Charity
 

Donating to Alice’s Arc, your money goes towards helping the clinical research of highly valued institutions such as the ICR, RM and GOSH and supporting families impacted by cancer.

Due to the lack of funding for childhood cancers, the research into less invasive treatments are not nearly as advanced as for some adult cancers. This means that the survival rate remains largely unchanged over the last 30 years. This needs to change. These children deserve a better chance to have a long and fulfilled life. You can give your donation here.

 

Great Ormond Street Hospital Charity
 

There are many ways you can get involved with GOSH, from organising a collection to creating your own fundraising event, buying a GOSH gift, joining a marathon or giving your own goods. Have a look at their website here, and get involved this Christmas. And there’s still time to join the London Santa Dash! All funds go to child and family support, rebuilding and refurbishment, research and equipment.

 

Grace Kelly Children’s Cancer Trust
 

All funds raised for Grace Kelly Children’s Cancer Trust will go towards raising awareness of childhood cancers and its signs and symptoms. They produce educational resources for parents and clinicians, provide support to families and fund research into rare tumours, including malignant rhabdoid tumours, AT/RT tumours, rhabdomyosarcoma and undifferentiated sarcomas. Give your donation or find more information about creating your own fundraising here.

 

Cancer Research UK
 

By buying from your local Cancer Research UK store, you are making a donation to this organization. You can also bring your unwanted goods to your local shop, donate, fundraise, volunteer or join one of their marathons or events, and raise funds. More information on how to get involved here.

 

They fund research in various ways, from their five research institutes, to grants for investigator-led programmes, projects and training fellowships. Their funding spans the research pipeline, and their diverse portfolio includes research into a wide range of cancers. In 2017/18 it included £57 million for research into detecting cancer earlier, and £35 million on research into possible cancer causes and prevention. Find more information here.

 

We walked THE Shine Night Walk London in support of Gaspard's journey, his family and the medical teams surrounding them, and raised more than 10k!

As Brad Gudger, two-time cancer survivor and healthcare activist, said:

“There is nothing more powerful than human connection.”

Let’s come together this Christmas to support those who are suffering, those who are caring and those who are surviving. They deserve a Christmas full of love, light and hope, just as you do.

Noemi Plaza

Noemi Plaza

Noemi is the founder of KeiSei Magazine. While she has many interests, especially those involving anything creative, she is most passionate about transforming modern attitudes towards consumerism. Born and raised in Barcelona, she enjoys life as a Londoner now.

Noemi Plaza

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